San Diego Polio Survivors
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This page keeps members updated on each other and on the latest happenings within the organization.

Speaker Announced for July 11th, 2009 Meeting

Our speaker will be Ben and Johanna Burhans from California Mobility Center discussing personal stairlifts and home elevators for those of us with a physical disability who need to climb stairs. Many us of find ourselves in two story homes with stairs that years ago were not much of a problem. Most of us now find climbing stairs much more difficult if not impossible. Well, before you decide to sell your home you need to learn about the various kinds of equipment that will allow us to stay in our existing homes. Ben and Johanna will also be available to discuss the options which would pertain to your existing situations. In addition to our main speaker a representative from the Salk institute will be filming our meeting, along with other local polio survivor groups, to create a video about those of us dealing with Polio. Of course, we will have our usual reports and discussions on topics related to surviving polio and post polio syndrome.

Speaker Announced for March 14th, 2009 Meeting

We will be having a speaker from the San Diego Police Department who will be discussing the topic of personal safety with members of our group.

Program Announced for January 10th, 2009 Meeting

We will be viewing and discussing a 30 minute video entitled "The Last Lecture." The video provides insights and perspectives regarding ones life accomplishments and the legacy we leave behind, with and without a disability.

Annual Holiday Party to be held December 13th at 11AM

Our Annual Holiday Party will be held at 11AM December 13, 2008 at our usual meeting location in Kaiser Hospital. Be sure to come and join the fun.

This year we will be having a pot luck.


Members are invited to, but not required, to bring a salad or desert to share. Coffee and cold drinks will be provided.

Holiday music and song will be provided by Mike Blazick.

Please bring along a wrapped, White Elephant gift to exchange. Please limit the cost of the white elephant gifts to $5

If you would like to come at 10AM and help us decorate the room to make the party merrier we could sure use the help and supervision!

Contact Gladys Swensrud (858-271-9288) or Rick Kneeshaw (858-566-4016) if you will be attending, or have any questions.

Come anyway to enjoy the fun!

Speaker Scheduled for November 8th, 2008 Meeting

Our speaker will be Urban Miyares, co-founder/director
Challenged America program.

"Challenged America" is a free recreational rehabilitation sailing program for kids, adults and seniors with disabilities, and their loved ones and care providers. Families with children as young as 5 years of age, or grandparents in their late 80's having disabilities participate in the "Challenged America" program.

The program will teach you to sail for free and provide the sailboats! You can start with a small sailboat and learn your way up to a 40 foot or larger boat.

If you have ever watched those beautiful sail boats gliding around San Diego Bay and wished you were on board you will certainly benefit from hearing this speaker.



Speaker Scheduled for July 12th, 2008 Meeting

Our speaker will be Dr. Sara Fainstein.

Dr. Sara Fainstein has advanced degrees in Clinical Psychology and Public Health. She has been the group facilitator for the Wellness Community-San Diego, and is continuing this line of work through the Caring Community-Living with Cancer and more recently, Sharp Chula Vista Medical Center's Breast Cancer Patient Navigator Program.

Dr. Sara is also a polio survivor herself and will be making a presentation to us on learning how to relax and deal with stress. She currently teaches relaxation techniques to cancer survivors in San Diego.

Dr. Fainstein is an independent consultant with various organizations, including San Diego County Cancer Navigator, where she provides patient services and outreach with a focus on the underserved and Latinas living with breast cancer. In addition, she facilitates two Spanish-speaking breast cancer support groups for San Ysidro Health Center's PODER Program; a monthly Spanish-speaking group for parents of children living with cancer at Rady Children's Hospital and Health Center-San Diego and co-facilitates a monthly Spanish-speaking group (Grupo Esperanza) for adults with all cancer diagnoses and at all stages of the disease, at the Moores UCSD Cancer Center with Mercedes Garcia-Mohr, Licensed Clinical and Oncology Social Worker.
Dr. Fainstein's focus has always been working with underserved populations, in particular Spanish-speaking individuals living with cancer and their families. She facilitates educational programs and adds a stress reduction component to her support groups, in the form of relaxation and visualization.


If you have ever been stressed as a polio survivor you will certainly benefit from hearing this wonderful speaker.

Speaker Scheduled for May 10th, 2008 Meeting

Our speaker will be Stasia Place from the San Diego County Office of Emergency Services, (858) 565-3490.

Stasia will be making a presentation on Emergency Preparedness for folks with a Physical Disability. This is a very important topic for those of us who live in San Diego County, especially in light of the recent wildfires and the ever present potential for earthquakes.
Evacuation procedures for polio survivors are substantially more complicated because of our mobility constraints and ongoing medical conditions.

Don't miss this important presentation so you are as prepared as possible before the next fire, or the "big one" finally hits.

Speaker Scheduled for March 8, 2008 Meeting

Our speaker will be Judi Ravetti from RAVETTI"S Adaptive Apparel in La Mesa. Judi will be teaching us about various kinds a adaptive clothing that is available for people with physical disabilities. You will discover that there are many types of specialty clothing items that make living with a physical disability easier.

Speaker Scheduled for January 12, 2008 Meeting

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Steve Goldman

The guest speaker for the January meeting will be our own Steve Goldman. Steve will be doing his annual "What works for You" presentation.

This popular presentation format is one in which Steve encourages members of our group to share techniques, methods, products, and procedures that assist us in solving the daily challenges that face those of us with Post Polio Syndrome and Post Polio hassles. All members are encouraged to bring problems and challenges, along with their own solutions, to the meeting share during Steve's presenation.

This year, in order to assist our virtual members who cannot attend the meeting, we will be documenting what we learn during Steve's presentation and publishing it on this web site so everyone can benefit from Steve's presentation.

If any of our virtual members would like to submit a problem and solution for Steve to use during his presentation, and possibly be published on this website you may submit it to Steve prior to the January meeting by clicking the link below.

Click here to email Steve

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Annual Holiday Party to be held December 8th at 11AM

Our Annual Holiday Party will be held at 11AM December 8, 2007 at our usual meeting location in Kaiser Hospital. Be sure to come and join the fun.

This year we will be feasting and sharing from a giant sub sandwich generously donated by Progressive Medical, Respiratory Therapists (800-491-2292).

Members are invited to, but not required, to bring a salad or desert to share. Coffee and cold drinks will be provided.

Holiday music and song will be provided by Mike Blazick.

Please bring along a wrapped, White Elephant gift to exchange. Please limit the cost of the white elephant gifts to $5

If you would like to come at 10AM and help us decorate the room to make the party merrier we could sure use the help and supervision!

Contact Gladys Swensrud (858-271-9288) or Rick Kneeshaw (858-566-4016) if you will be attending, or have any questions.

Come anyway to enjoy the fun!

Agenda for November 10th, 2007 Regular Meeting Set

Dane Holderman from Progressive Medical will be our guest speaker discussing breathing issues for polio survivivors especially in light of the current smoky conditions resulting from the recent fires.

Dane Holderman attended the University of Arizona and graduated with Honors, Phi Beta Kappa with a Bachelor of Arts in Psychology.

Dane was introduced to the field of Sleep Research while working as a Research Assistant at the University of Arizona Sleep Lab, supervised by Richard R. Bootzin, PhD. where he acquired general knowledge of the psychological and theoretical basis for studying sleep in humans. He was also exposed to a variety of aspects of sleep research, working with both adults and children, studying issues such as insomnia and depression. He applied for, and out of numerous applicants, solidified the prestigious William C. Dement Apprenticeship, duly named after the renowned Board Certified Sleep Specialist, at Stanford University. His externship consisted of training in the field of Polysomnography thru the Bradley Sleep and Chronobiology Lab at Brown University. Upon graduation he became the Lead day PSG technician at the University of Arizona, Respiratory Sciences Sleep Lab. Dane worked mainly on the APPLES study (apnea positive long-term efficiency study), where he became familiar with many different types of sleep disordered breathing.

In December of 2006 Dane relocated to San Diego and started working for Progressive Medical, a home respiratory company, well known for their specialty in Neuromuscular Ventilation. He has been fully immersed in learning the proper way to ventilate this very unique community. His education has included attending the American College of Chest Physicians conference on Noninvasive Ventilation this past June held in Canada. Dane assists the ALS community through the UCSD ALS clinic performing Pulmonary Function Testing needed to follow the disease progress. He has had tremendous exposure and enjoys working with the Post Polio patients that are on service with Progressive Medical.

Agenda for May 12th, 2007 Regular Meeting Set.

The next San Diego Polio Survivors meeting will be held on Saturday, May 12 at 10:00am at Kaiser Permanente's Zion Hospital location/Classroom 3. The speaker at our May 12th meeting will be Michele McLain, American Institute of Architects, who will speak on "Architectural Modifications for the Disabled."

Michelle is a well known and highly recommended and respected architect in San Diego County who has had previous experience modifying residences for persons that happen to be physically disabled.

At some point each of us will need to make some changes to our homes to make mobility and access easier. Now is the time to learn what might be possible, and how to select an experienced architect and contractor who can get the modifications done correctly at minimum cost. This should be a resource filled, information packed meeting.

Agenda for March 10th, 2007 Regular Meeting Set.

The next San Diego Polio Survivors meeting will be held on Saturday, March 10 at 10:00am at Kaiser Permanent's Zion Hospital location/Classroom 3. We have two scheduled guest speakers: Marty Becerril, D. C., Patient Resource Program Coordinator for U.C.S.D. School of Medicine's Professional Development Center, and Sue Peeters, board member of the San Francisco Bay Area Polio Survivors. This should be a resource filled, information packed meeting.

Agenda for January 13th, 2007 Regular Meeting Set.

Our next regular meeting will be January 13, 2007 at 10AM at our new Kaiser hospital location. We will be having an open roundtable discussion of any and all topics related to polio and post polio syndrome. Steve Goldman will assist in moderating the discussion.

Bring along all your questions for the group as there are a number of "self taught polio experts" in the group who can share their experiences and tricks dealing with polio and PPS.

Annual 2006 Holiday Party Photographs.

Our annual Holiday 2006 party was held at our new Kaiser Hospital location. We had a great turnout with lots of food, song, and fun. Check out the photos below.

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Mike Blazick Entertains Us

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Guest Speaker for September 14th, 2006 Meeting Announced

The guest speaker for the Setember 14, 2006, San Diego Polio Survivor meeting will be Terry Barton from the Abilities Center in San Diego.

The Ability Center, the West Coast's largest mobility company in San Diego, offers a one Stop Shopping alternative for their client's needs. Ability Center is on the cutting edge of assistive technology and mobility systems. The company offers accessible vans, wheelchair vans, new and used mobility vans, rental handicapped vans, handicapped equipment, wheelchairs, power-wheelchairs, mobility scooters, lifts ramps, home care medical and more.

Terry will be bringing a fully equiped van, with all the "bells and whistles" to the meeting to demonstrate to those who attend.



Guest Speaker for July 13th, 2006 Meeting

The guest speaker for the first hour of the July 13, 2006, San Diego Polio Survivor meeting will be Caridid Fleites, Outreach Specialist with the California Communications Access Foundation, who is a providing contractor for the California Public Utilities Communication. Ms. Fleites will discuss what her job entails, and she will tell us about the services the California Communications Access Foundation is able to provide to the disabled community within the state of California.

Of particular interest to the post-polio community is the free phone program. Ms. Fleites will share the three step process detailing of how specialized phones are provided free of charge to qualifying California residents.

The second half of our meeting will be a roundtable discussion.

Come prepared to share your thoughts and brainstorm!

Speaker Scheduled for May 11, 2006 Meeting

Shawna Parks, Esq.
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Our speaker will be Shawna Parks, Esq.

Shawna L. Parks is Director of the Civil Rights Litigation Project at the Disability Rights Legal Center. Ms. Parks has worked extensively on high-impact cases affecting the rights of people with disabilities. These include cases regarding the rights of children with disabilities in the foster care and juvenile justice systems, provision of effective communication for people who are deaf or hard of hearing by public entities such as law enforcement, as well as cases involving physical access in a wide variety of contexts. Ms. Parks is a 1999 graduate of Boalt Hall School of Law at U.C. Berkeley. Upon graduation from law school, Ms. Parks was a Fulbright Fellow in Budapest, Hungary, where she focused on the implementation of Hungary's disability rights legislation. Prior to joining the Disability Rights Legal Center Ms. Parks was an Equal Justice Works / Cotchett-Furth Fellow and Staff Attorney at Disability Rights Advocates, and an associate at the civil rights law firm of Schonbrun DeSimone Seplow Harris & Hoffman, where she focused on cases addressing race and gender discrimination.


Topic: The American's with Disabilities Act (ADA). What is the purpose of the law, how is it applied, what does it mean for each of us in everyday life living with a disability. Bringing your questions regarding this very current topic.


Lunch will follow immediately after the meeting.



Speaker Scheduled for March 9, 2006 Meeting

Our March meeting will feature a group discussion moderated by:

Bill Greer, M.D.
Univ. of Mich., M.D. 1948 & Menninger School of Psychiatry, 1955
Rick Kneeshaw, M.A.
University of San Diego, 1997 School of Leadership Studies


Topic: Frustrations with Physicians, and how have you overcome them.

Have you ever been frustrated by a physician or medical service provider? What was your experience? How did you feel? What did you do to get attention? What was the outcome? How would you change your approach if you were in the same situation again? What would you recommend to others in the same situation. Come and join us in a "certain to be" energetic discussion.

Lunch will follow immediately after the meeting.

Speaker Scheduled for January 12, 2006 Meeting

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Steve Goldman

The guest speaker for the January meeting will be our own Steve Goldman. Steve will be doing his annual "What works for You" presentation.

This popular presentation format is one in which Steve encourages members of our group to share techniques, methods, products, and procedures that assist us in solving the daily challenges that face those of us with Post Polio Syndrome and Post Polio hassles. All members are encouraged to bring problems and challenges, along with their own solutions, to the meeting share during Steve's presenation.

This year, in order to assist our virtual members who cannot attend the meeting, we will be documenting what we learn during Steve's presentation and publishing it on this web site so everyone can benefit from Steve's presentation.

If any of our virtual members would like to submit a problem and solution for Steve to use during his presentation, and possibly be published on this website you may submit it to Steve prior to the January meeting by clicking the link below.

Click here to email Steve

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Speaker Scheduled for our November 10th, 2005 regular meeting

Our next speaker will be Melanie P. Arledge, Clinical Respiratory Specialist.
Melanie graduated from the UCLA school of Health Sciences in 1985 with a Bachelors Degree. She has worked in the medical field in the greater San Diego region from 1988 to 1998 at various hospitals and facilities.

Melanie's first exposure to any form of Sleep Disordered Breathing was in 1995, at Palomar Hospital, working closely with the Sleep Specialist, Dr. Benjamin Kanter. She has since been employed with Progressive Medical as a Clinical Respiratory Specialist and Manager since 2000.

Founded in 1983 by Helen Kent, Progressive Medical had one goal in mind, waking up America to the benefits of better sleep while eliminating the dangers of sleep disorders. They strive to awaken patients, physicians and business owners to the joys of better sleep and the serious risks of sleep disorders, sleep apnea and disease-related breathing problems. Our specialty is in Neuromuscular Ventilation.

Speaker Scheduled for our September 8, 2005 meeting.

Marmaduke will be giving us an abreviated version of his presentation to the Polio Conference held last May in St. Louis. Here is how Post Polio Health International announced Marmaduke's presentation:

To enable the ultimate goal of efficient walking requires much more than making a brace for a limb. It requires a greater understanding of the Individual in need. Efficient walking must be planned. There are a plethora of issues that must first be recognized before they can be solved. The bracing of the future will no longer just be molded materials around a limb; it will improve the alignment of the limb better than ever before, it will offer more functional possibilities, the movement strategy and the brace will be designed to work together symbiotically for the person as a Solution based program, with efficient outcomes planned. In order to enable a person to reach new potentials, even potentials once thought unobtainable, an involved commitment by all involved is necessary.
We have all seen amputees walk and run with ease and grace. Why can't a brace user do that? Even people with very low-level paralysis involvement rarely can emulate what many amputees can do functionally. Why is that? The Solution development is more complex. Utilizing new clinical theories in lower-limb orthotics that are evidence based can enable a brace user to stand, walk, and even run more efficiently. New bracing solutions are now making it possible to close the gap between prosthetic's and orthotic's capabilities. These new bracing solutions are based on new or expanded concepts, designs, and advanced materials.

The new bracing solutions only enable an individual with a greater potential than they had before; what the person does with it is critical to the outcome. The people who have faced the challenge and overcame the obstacles are living a better life. Outcomes once thought unobtainable are now being realized. Activities thought lost forever are being reclaimed. A majority of the users can do more and use less energy and experience a reduction in fatigue. Many have a reduction in pain and many people feel stronger. Balance and security are improved with better mechanics and patterning; standing and walking are more efficient. Majority of individuals have downgraded the need for other assistive devices (canes, crutches) and majority of users are more active. Some people have regained muscles or muscle strength caused by disuse atrophy syndrome(s). Psychological benefits for users and members of their support systems have been witnessed.

Marmaduke Loke
DynamicBracingSolutions
www.DynamicBracingSolutions.net
BracingSolutions@aol.com
(619) 972-3853

Speaker Scheduled for July 14, 2005 Meeting

Norm Henry from the San Diego Police Department's Retired Senior Volunteer Program (RSVP) will describe the program to us, what it accomplishes, and what are the requirements for becoming involved with the program.

Speaker Scheduled for May 12, 2005 Meeting

Dr. Theresa Crawford Ph.D., Clinical Physiologist, who has been our guest speaker in the past will be back again as our guest speaker for the May 12, 2005 meeting. Dr. Crawford has a number of patients with post polio syndrome and is familiar with the Physiological implications of post polio syndrome.

Dr. Crawford will be leading a group discussion on these three topics:

What do you think you would be like if you did not have polio?

What advantages have come to you because of your disability?

Do you sometimes have difficulty asking other people for help?

Think these three topics over before the meeting and come prepared to have an interesting discussion led by Dr. Crawford.

Speaker Scheduled for March 10, 2005 Meeting

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Dr. Jim Donovan

Dr. Jim Donovan, a polio survivor himself and a retired pediatrician, will be making a presentation on hydrotherapy for the polio survivor. Dr. Jim, a member of our group, who regularly keeps us informed on polio related medical developments will be discussing various ways of using hydrotherapy to keep in shape as a polio survivor.

Dr. Jim has been using hydrotherapy himself and he will be sharing information about his own water exercise program and how we may be able to benefit from hydrotherapy ourselves.


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Speaker Scheduled for January 13, 2005 Meeting

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Steve Goldman

The guest speaker for the January meeting will be our own Steve Goldman. Steve will be doing his annual "What works for You" presentation.

This popular presentation format is one in which Steve encourages members of our group to share techniques, methods, products, and procedures that assist us in solving the daily challenges that face those of us with Post Polio Syndrome and Post Polio hassles. All members are encouraged to bring problems and challenges, along with their own solutions, to the meeting share during Steve's presenation.

This year, in order to assist our virtual members who cannot attend the meeting, we will be documenting what we learn during Steve's presentation and publishing it on this web site so everyone can benefit from Steve's presentation.

If any of our virtual members would like to submit a problem and solution for Steve to use during his presentation, and possibly be published on this website you may submit it to Steve prior to the January meeting by clicking the link below.

___________________________________________________________

Carlos Valenzuela Presented at November Meeting

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Carlos Valenzuela

Carlos Valenzuela, owner of Progressive Orthopedics, of San Diego, made an excellent presentation on new orthodic bracing technologies to our members during the November meeting.
Carlos discussed the fundmentals of gait and skeletal structures and their effect on the design requirements of well designed custom built bacing. Carlos also explained the difference between "AFO" and "KAFO" orthodics and the different type of construction techniques and methods.
Carlos also emphasized the personal relationship and communication that must take place between the orthotist and the patient for a sucessful and comfortable brace to be constructed by the orthotist and utilized by the patient. If you have any more questions for Carlos you may call him at 619-280-9174.

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Canine Companions Presentation at September 9th Meeting

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Canine Companions for Independence, a national nonprofit, enhances the lives of people with disabilities by providing highly-trained assistance dogs and ongoing support to ensure quality partnerships. Jane Drover and her assistance dog in training were at our meeting to explain the services provided by Canine Companions for Independence. Jane explained how the program works, and the process for training the dogs. The presentation also included short demonstration of some of the skills her dog has already learned.

You may contact Canine Companions directly at:

Megan Gray
Volunteer Coordinator/Instructor
Canine Companions for Independence
Southwest Region
(760) 901-4308

Our Web Site Continues to Grow

Our web site is getting over 5,000 hits per month now.

Many polio survivors that live in smaller cities and towns, and those that live in other countries, are using the site as their virtual support group, a wonderful benefit we never envisioned when we started the site.

The site is now listed in the various polio directories that exist on the web.

Some search engines now list our new site site when you search on "Polio Survivors in San Diego." Goggle now has our site listed first!

Be sure and pass the URL along to anyone who might benefit from visiting our site.

Let us know if there are any events or updates you would like to share with fellow members.

San Diego Polio Survivors