ABILITIES Magazine Article on Zoo Lawsuit
The "Teri Garr" issue of ABILITIES magazine, volume 2007, features an article about our successful lawsuit against
the San Diego Zoo to protect your rights to enter public places on scooters, or in electric wheelchairs, without being forced
to sign legal waivers. Hopefully all persons who are physically disabled will read the article and understand that requiring
unusual or additional entry procedures for the disabled is illegal under the Americans with Disabilities Act (ADA).
Click here to learn more about ABILITIES Magazine
May 12th, 2007 Meeting Report
Our guest speaker in May was architect Michele McLain, AIA. Her program, "Accessible Living for the Physically Challenged"
was a great combination of slide presentation and handout. Michele began her visit by noting that each person is an individual,
so our needs are uniquely individual as well. In home building and/or remodeling, the home owner generally tries to anticipate
future physical challenges to incorporate into their plan. Michele explained that by using an architect, the professional
can suggest many useful additions which should make your planning process flow much smoother.
Michele added that those experiencing PPS are pioneers in the art of aging. As polio survivors, we are facing many early
limitations, which the general population will also encounter as they age. She mentioned that "Universal Design"
is a fairly new buzz word, but Michele felt we were the originators of that term because our needs prefaced its use.
Some remodel ideas are basic, like adding handicapped toilets and grab bars, but there are many, many ideas that could
be combined with your plan to help you live more comfortably in your home for as long as is physically possible. An architect
can assist you in anticipating some of your unique needs and goals, thereby eliminating potential future barriers.
A few of the many suggestions Michele had to offer were:
A five foot turning radius at the entry to your home so you can turn and close the door.
Use a swing clear hinge on interior doors to gain the width of the doors for entry and exit.
Trash bins that tilt out toward the user
Installing lever handles on all doors makes for easier use for everyone in the home.
Flooring thoughts -
1. Ceramic flooring should be non-skid.
2. Use resilient flooring that is not too light to show scuff marks or too dark to reduce visibility.
3. Vinyl is good for people who wear braces.
4. Carpeting should have a thin pad or none at all so as not to impede wheelchairs or walkers.
5. Carpets should be glued down or stapled in place.
In kitchens, entertain 48" isle widths for easier maneuvering.
A wheelchair user might consider a 34" counter top a better access height.
Some parting thoughts Michele shared were:
As you begin planning for that remodel, you might want to allow twenty to thirty percent for overruns and project costs,
which you may not anticipate.
She encouraged everyone beginning a redo project to find and watch Mr. Blandings Builds His Dream House. It is a 1948
comedy in which a man (Cary Grant) and his wife (Myrna Loy) decide they can afford to have a house in the country built to
their specifications. It ends up being a lot more trouble than they think!
Being disabled doesn't trump zoning, so Michele suggested checking all zoning regulations prior to entertaining a remodel.
Michele McLain's territory covers most of San Diego County, but she generally services the north county. You can reach
Michele McLain, AIA
P.O. Box 905
San Marcos, CA 92079
Telephone number: (760) 743-1955
Fax number: (760) 743-1919
She can also be reached by email at: firstname.lastname@example.org
Tips from Dr. Bruno
T'N'T: Tips and Techniques for Polio Survivors
Exercise: Use it and Lose it
by Dr. Richard L. Bruno
<<I read that you don't recommend exercise for polio survivors who are getting weaker. But if I stop exercising
and do nothing, won't I lose muscle tone, get flabby and become deconditioned and become weaker still?>>
You're asking a good question but are using buzz words that Americans hear on infomercials. It's vital that polio survivors
understand what the research really says about exercise for newly-weakened muscles and know the definitions of "muscle
tone" and "deconditioned."
We never tell polio survivors to "do nothing." Both The Post-Polio Institute and Warm Springs long-term follow-up
studies find the same thing. All PPS symptoms, fatigue, pain and muscle weakness, decrease when polio survivors stop exercising
and follow The Golden Rule: If anything causes fatigue, weakness or pain, DON'T DO IT! (Or do much less of it.)
Unfortunately, those who recommend strengthening exercise to polio survivors quote from the conclusions of a half-dozen
small studies of leg muscle strengthening, apparently without having read them critically. The studies' conclusions say that
exercise programs "lead to significant gains in strength."
However, when you look at the responses of individual subjects the "significant gains in strength" are hard
to find. Just over half of the studies subjects had an increase in upper leg muscle strength of about 26%. One quarter had
no change in strength while 21% actually had a decrease in strength of about 10%.
So almost as often as not exercise either had no effect or actually decreased muscle strength.
What's more, only two studies asked whether exercise affected polio survivors' fatigue and their ability to function in
their daily lives. In one study, strength increased by 36% but muscle fatigue also increased by 21%. In the other study,
although muscle strength increased by 30%, there was no improvement in polio survivors' ability to do daily activities, and
muscle fatigue increased as much as 300%! You have to ask whatgood comes from any small percentage increase in muscle strength
that is not related to improved functional ability and that actually increases muscle fatigue more than strength.
And what of "muscle "tone"? Most people think that muscle tone means muscles that are firm and have a nice
shape. Muscle tone actually means that muscle fibers are ready to contract. Muscle tone is lost when motor neurons are
damaged and can't turn on muscle fibers. Loss of tone can happen when polio survivors exercise too much and muscles become
weaker when poliovirus-damaged motor neurons fail. Remember, PPS researcher Alan McComas found that polio survivors who have
muscle weakness lose at least 7%
of their motor neurons each year (see PPS Forum June 2001). This is why he concluded that "polio survivors should
not engage in fatiguing exercise or activities that further stress metabolically damaged neurons that are already overworking."
Polio survivors' muscles get smaller lose tone if they're overused and the motor neurons that turn on the muscle fibers
die. Arms and legs get flabby because of increased fat deposits, not a loss of muscle tone. Exercise does
burn fat and at first causes muscles to increase in size. But polio survivors don't want bigger muscle fibers because
they "further stress metabolically damaged neurons that are already overworking." The best way to prevent flabby
and legs is to stop overusing and abusing your motor neurons and to follow the higher protein, low fat and lower carb
Post-Polio Diet (see PPS Forum July, 2002).
And what does "deconditioned" mean? Many polio survivors believe that there are only two ways to live: overusing
and abusing or being a couch potato and becoming "deconditioned." Deconditioning is something that happens when
astronauts live in space or you put someone to bed for weeks, removing the pull of gravity and causing a decrease in blood
volume and blood pressure.
Deconditioning can only happen if polio survivors never leave the couch, not if they take two daily rest breaks on the
couch, take a ninety minute nap, stop strengthening exercising or use a power wheelchair.
However, polio survivors may need to "condition" their hearts, especially if they have had a heart attack. "Cardiopulmonary
conditioning" uses exercise to
strengthen the heart muscle (which was not affected by polio) and make it work more efficiently. However, there is no
benefit to running on a treadmill or riding a bicycle to exercise the heart if you thereby stress and kill off
poliovirus-damaged motor neurons. Many polio survivors can do heart conditioning by using their less affected limbs, usually
their arms, in a carefully monitored program of paced and non-fatiguing exercise (see PPS Forum May
Dr. Richard Bruno is Chairperson of the International Post-Polio Task Force and Director of The Post-Polio Institute and
International Centre for
Post-Polio Education and Research at Englewood (NJ) Hospital and Medical
Center. His book, THE POLIO PARADOX: UNCOVERING THE HIDDEN HISTORY OF POLIO
TREAT "POST-POLIO SYNDROME" AND CHRONIC FATIGUE , is published by Warner
Books. (AOL Keyword POLIO PARADOX.) E-mail questions to him at PostPolioInfo@aol.com.
San Diego Polio Survivors January 14, 2007 Meeting Report
Our Saturday meeting was a smorgasbord of wonderful information. To open this month's gathering, Steve Goldman led a discussion
about the ways in which our lives have taken positive turns as a result of having had polio. Steve noted that although we
each have ways in which our lives could been different, we had no control over contracting polio, so we moved forward in positive
ways, and that is what he wished to bring into focus.
The general thread, which ran through this segment of the meeting, was that the typical, type A personality trait, which
gave us the strength to overcome our original bouts with polio, also gave our children a special understanding of how we met
life's adversities with a "can do" attitude. That permeated the very being of their existences as well and translated
to a similar strength in the way they approached their lives. We generally agreed that our children are strong, sensitive
young people, perhaps owing, partially at least, to the way they observed us interacting with others and living determined
lives in spite of any residual effects of polio.
Gladys Swensrud filled the last few minutes with a presentation on several useful kitchen gadgets designed to make life
easier for the muscle challenged. She mentioned that although the kitchen was once her favorite room in the house, it is
now the source of some of her greatest daily challenges. To minimize those concerns, she planned a visit to Kitchens Plus
at North County Fair to see if there were some new ideas for simplifying her daily kitchen responsibilities.
The helpful staff at Kitchens Plus wandered the store with her and came up with many tremendously helpful items such as:
an easy-grip ice cream shovel to replace her tiny metal scoop, several easy-to-hold handled dry-scoops of various sizes for
sugar and flour canisters, and a jar opener with teeth to grip those difficult to open peanut butter jars. Gladys's experience
was extremely useful to shore up some of her personal kitchen needs, and she recommended a visit to your nearby kitchen shop
as an outing soon.
By Gladys Swensrud
Our Dear Friend and Long Time Member, Bob Hudson, Passes Away
Robert W. Hudson, 77, died of natural causes Saturday, Dec. 30, 2006,
at Scripps Green Hospital in La Jolla.
Mr. Hudson is survived by his companion of five years, Alice Gowing of San Marcos; sons and daughters-in-law Donald and
Julianne Hudson of San Marcos and Dean and Meg Hudson of Mission Viejo; daughter and son-in-law Marlene and Vern Cunningham
of Riverside; brother C.B. Hudson of Gainsville, Ga.; eight grandchildren; and three great-grandchildren.
A Mass will be celebrated at 2 p.m. Saturday, Jan. 13, at St. Mark's Catholic Church in San Marcos.
A private cremation is planned.
The following information on Bob is edited from his profile which he wrote for our website over two years ago. Reading
it will give you some insight into Bob's humor and ever positive attitude which he used to entertain us all at every meeting
he attended. We will miss him. [Rick]
I am a native Californian, born in San Francisco, the city by the sea and moved to Los Angeles when I was 4 years old.
I have one brother 16 months older. We were raised by my Mom and grandma until I was 14 years at which time my Mom got remarried
and we moved to another home in the south part of Los Angeles.
I completed high school in 1947 and after a short stint at Douglas Aircraft Copany, I joined the Merchant Marine with
four of my friends. I was able to go through the Panama Canal both ways via Kobe Japan.
I went to work for the telephone company in 1948 as an installer then got married in 1949. Our first child was born 9
months and 13 days latter (phew!) followed by our daughter 12 months later.
We purchased a home in Manhattan beach in 1952 and 8 months later I contracted Polio and was taken to Los Angeles County
General Hospital and placed in an iron lung. My life with Polio had begun with total paralysis. I was moved to Rancho Los
Amigos 3 weeks latter. I remained there until I no longer required respiratory assistance. Then in December 21 1952, I was
moved to Kabot Kaiser Institute in Santa Monica where I underwent intensive therapy for 14 months (8hrs a day, 5 days a week)
I was released in April 1954 being able to walk and take care of myself. Fortunately I still had my wife and 2 lovely children
I returned to work in July of that year after some help from our local union. I remained in a craft assignment until I
was promoted to management in 1964, and after various assignments, I wound up in interoffice engineering specalizing in fiber
I have enjoyed flying and boating. I was president of the International Wheelchair Aviators for 2 years, 1993 to 1995,
during which time we flew once a month to various locations in California, Nevada, and Arizona for lunch.
While I was living in Manhattan Beach, I assisted my neighbor in the construction of 12 small boats and in 1966 I owned
a 26 foot sloop which we used to go to Catalina and catch fresh lobster for dinner.
After one more boy in 1958, 3 wives, 1 broken nose, 1 dislocated shoulder, 2 broken legs, 8 grandchildren, one great grand
child, and an 8 year stint with another woman, I have settled down in my quiet little cottage with a caregiver, a rampvan
and electric wheelchair, and a lovely lady I see quite often. Life is good (but I'm getting nervous!!)
writ by hand, age 75
ADA Lawsuit with San Diego Zoo Settled
|Rick and Gladys Celebrate
San Diego Zoological Society Settles Case Alleging Discriminatory
Entrance Policy for People with Mobility Disabilities at the
San Diego Zoo and Wild Animal Park
SAN DIEGO (NOVEMBER 29, 2006), The Disability Rights Legal Center (formerly Western Law Center for Disability Rights)
announced today that it has reached a settlement with the Zoological Society of San Diego to end what it alleged were discriminatory
practices against people with mobility disabilities. The settlement was reached in the federal suit Kneeshaw v. Zoological
Society of San Diego, Case No. 05-CV-2127-IEG DT (POR), and covers both the World Famous San Diego Zoo and the Wild Animal
As a result of the settlement, the Zoological Society will permanently discontinue its policy of asking people who use
motorized mobility aids, such as motorized scooters and wheelchairs, to sign liability waivers or any document regarding their
use of such aids in the Zoo or Wild Animal Park. As for previously signed waivers already on file under its prior entrance
policy, the Zoological Society has agreed to void all such waivers and never enforce them. In addition, it will notify those
who have signed or been deemed to have signed the waivers by putting a notice on its website, its maps, its accessibility
guide, and via letters to those who had been subject to the previous policy.
"We are extremely pleased that we were able to reach a resolution with the Zoological Society" said Shawna L.
Parks, Director of Litigation at the Disability Rights Legal Center, the nonprofit legal organization that represented the
plaintiffs. "The settlement allows people with mobility disabilities to once again enjoy their visits to the Zoo without
hindrance or discrimination. The Zoo agreed to do the right thing here."
Named plaintiff Gladys Swensrud, a long time member of the Zoological Society, was very pleased with the result. "Although
I'm sad about the time I lost at the Zoo, I eagerly look forward to resuming my visits to the Zoo with my friends and seeing
the animals together," she said.
The settlement represents a major victory for people with mobility disabilities who use motorized scooters and wheelchairs.
In November of 2005, plaintiffs Rick Kneeshaw and Gladys Swensrud, both polio survivors, motorized scooter users and long
time members of the Zoological Society, filed the lawsuit against the Zoological Society claiming that the entrance policy,
which mandated that motorized wheelchair and scooter users sign a liability waiver in order to enter the Zoo, unlawfully discriminated
against people with mobility disabilities.
Under the Zoo's policy, persons who used motorized wheelchairs and scooters were pulled from line, presented with a series
of documents, and required to sign a waiver and indemnification agreement before being allowed to enter the Zoo. The waiver
placed all liabilities and risks on the person with a disability for incidents at the Zoo involving the mobility device, even
if the Zoo or its employees were at fault. No other Zoo patrons were subjected to this treatment or forced to sign such waivers
in order to visit the Zoo. The suit alleged that the Zoo violated the Americans with Disabilities Act and California civil
rights laws, and sought a court order to remove the illegal and discriminatory policy and waiver requirement.
"I'm glad that we were able to convince the Zoological Society that it is the right thing to do to stop this policy.
I just wanted to bring my granddaughter to the Zoo. She was looking forward to seeing the elephants, and I was so embarrassed
to be pulled out of line, and treated like a criminal in front of my granddaughter," said Mr. Kneeshaw. "I'm glad
I got to show my granddaughter that it is important to stand up for our rights and make a change for the better. I can't wait
to go back to the Zoo."
The plaintiffs were represented by the Disability Rights Legal Center, a thirty year old non-profit organization that
protects the civil rights of individuals with disabilities.
Click Here to See the Local Press Coverage of the Zoo Settlement
Carlos Valenzuela's Presentation on Warm Springs, Georgia
The first San Diego Polio Survivor's meeting held at our new, Kaiser Permanente/Zion Hospital location on November 11, 2006,
was a huge success! Our turn out of 30+ was fantastic, and as a result of the change from the workday Thursday to a more
convenient Saturday, we welcomed many new members. Introductions enabled us to greet returning members and gave us an opportunity
to learn a little about our new members.
The guest speaker for the day was Carlos Valenzuela from Progressive Orthopedics.
Carlos immediately told us his talk would barely touch on his expertise in the field of bracing since the topic for this
presentation was his recent trip to the Roosevelt Institute at Warm Springs, Georgia. However, when he did discuss the physiology
of bracing, we were all impressed with his vast knowledge and experience. From Carlos's enthusiasm, we could sense that as
his professional career in bracing is winding down, he has become more and more interested in the history surrounding his
decades long profession.
Carlos transported us via a slide presentation on each mile of his trip from San Diego to Georgia and back. He told us
this excursion had been originally planned to include polio survivors, but for various reasons by the time of departure, all
survivors planning to go had dropped out. He felt fortunate to have two of his fellow orthotists from San Diego accompanying
him on this journey.
As the program began, Mr. Valenzuela explained that from the Atlanta Airport the drive to Warm Springs is approximately
63 miles. He showed us a slide of the original entrance to Warm Springs, which is no longer used. He said it could be the
condition of the historic old entrance and road which prevented it from being used any longer, but the new road was quite
accessible. He said during the drive he could sense the emotions a visitor with polio must have felt back in the 1930s/1940s,
filled with hope of rehabilitation as they drove past the entrance and onto the grounds.
Roosevelt set the buildings up more like dormitories, rather unlike a traditional hospital. Carlos took us on a "virtual
tour" through the facility and along with accompanying slides told stories of the history and of research conducted during
the 1930s and 1940s.
Carlos was quite taken with the architecture; he explained that construction of the buildings used extensive columns both
inside and outside. It appeared from the slides that it was reminiscent of the architecture of the old, southern plantations.
The Warm Springs Hospital was laid out as a quad, with the buildings all facing one another in a large square. There
were rehab areas spread throughout the center of the square where rehabilitation sessions would take place. He showed us
an example of a large, cement square with stairs coming up from each side, all leading to a central platform; there were handrails
for patients to hold onto to stabilize each step. This was used to teach patients how to use muscles more effectively as
they came up or down stairs and/or to practice how to balance more successfully with those motions.
Carlos relayed some of the history of Eleanor Roosevelt's involvement with making the Warm Springs program successful.
He also brought up the issue of segregation during that era and spoke of the fact that black polio survivors were not given
access to the Warm Springs facility. In order to meet the polio needs of the black community, Eleanor was instrumental in
establishing a separate center for African-American victims of polio at Tuskegee College.
It was fascinating to see the slides Carlos provided of the cement pools that stand as a tribute to the warm-water, therapy
pools that were so famous of that location; he also had a wonderful pictorial history of the clothes changing areas and of
the staging areas for entering and exiting the pools. Carlos felt an emotional tug of the history of that era surrounding
him at every turn. He ran through a list of the buildings that still stand as historical monuments on the Warm Springs site:
the Roosevelt family cottage where the president lived when he was visiting, the "Little White House" (which was
his working office), FDR's secretary's house ( where Lucy Mercer lived), the chapel, the hospital proper, etc.
Carlos also discussed some of the many collections that remain for today's visitors to enjoy, like the entire display
case of canes that have been received from survivors all around the world. And he chronicled FDR's love of driving on the
grounds of Warm Springs. It was fascinating to see the historical photos, which explained the mechanics of how, with the
help of hand controls, FDR was able to drive without the use of his legs.
As Carlos brought us into the present and more modern uses for the Roosevelt Institute at Warm Springs, Georgia, he added
that today's use of the facility has been expanded to meet the needs of the ever-growing neuromuscular community as a whole.
With polio on the fringes of eradication, there are fewer numbers of polio survivors applying for evaluation, yet other disorders
like ALS add substantially to the overall impact and needs of the neuromuscular population.
Carlos closed with his recommendation of two books, FDRs Splendid Deception by Hugh Gregory Gallagher and POLIO: an American
Story by David M. Oshinsky.
New Meeting Location and Date Changes
In order to more efficiently fulfill our mission of providing current and informative information to the polio community we
will be moving to a new more central location for our meetings that includes more professional surroundings with multimedia
audio/visual equipment, and a convenient adjacent location to have more frequent luncheons and potlucks as integral part of
We will be meeting on Saturdays, starting November 11 at Kaiser's main hospital on Zion Avenue. The address is: 4647
Zion Avenue San Diego, CA 92120
This first meeting we will be in Classroom 4 in the basement. Once you take the elevator down, the classrooms are across
the hall from the cafeteria, so follow the signs to the cafeteria and you can't miss our room!
This should be a fun new adventure!
On Saturdays parking will be easily available and handicapped accessible restrooms are nearby. The hospital has also offered
us a private portion of their cafeteria for luncheons where we could either bring our own food, or purchase food there.
Clik Here if you need driving instructions to the new location. Please also see the "Meeting Location" Page of this Website.
Shawna Park's Presenation on the Disability Rights Legal Center
|Shawna Parks, Esq. at May 2006 Meeting
Those who missed this May's San Diego Polio Survivors meeting missed a wonderful presentation by an outstanding guest speaker.
We were honored to have Shawna Parks, Director of the Civil Rights Litigation Project for the Disability Rights Legal Center
(DRLC) based in Los Angeles at Loyola Law School, speak to our members about various facets the Americans with Disabilities
Act (ADA). Ms. Parks prefaced her discussion by explaining the close working relationship shared by Loyola Law School and
the crew of attorneys involved with the DRLC on their campus. She explained that it affords both sides a heightened sensitivity
to ADA issues as they simultaneously teach and learn about the problems the handicapped community within the state of California
experiences. Shawna explained that the goal of the school/legal center relationship is to educate the legal community about
ADA issues from the very basic instructional level.
Ms. Parks told us that she was involved with litigation processes. She works primarily on high impact cases which often
represent a large number of people. Her cases have the possibility of greatly impacting the disabled community in important
ways. Coincidentally, and extremely appropriate to our post-polio our group, Shawna explained that she was involved a couple
of years ago with a legal action to prevent the closure of the polio center at Rancho Los Amigos. Shawna detailed how she,
along with involvement of Loyola Law School and three other supportive organizations, fought a class action suit to keep Rancho
Los Amigos from closing its doors to the PPS community. As a result of their efforts, the court decided Rancho Los Amigos
would stay open for three years longer, and during this period of time they would work on a plan keep the doors to Rancho
Shawna noted other programs in which the Disability Rights Legal Center is involved with aside from her specific involvement
with the Civil Rights Litigation Project. She discussed:
The Disability Medication Center which mediates such issues as landlord disputes, ADA accommodations issues, university
mediations issues, and they offer a phone referral service.
There is a Cancer Legal Resources Center for issues related to trusts and other items which assist patients diagnosed
with cancer better deal with their disease.
The Education Advocacy Project which does presentations to employers, schools or anyone who might like to learn more about
And finally they run a Community Outreach Program which has a lawyer referral service.
Ms. Parks explained that all of services they provide are free to clients. They usually assume cases that have great
merit; and in the end, when they win such cases, the defendants in those cases are charged with paying the DRLC's legal fees.
Shawna's handouts followed a Powerpoint format; they were detailed and easy for our group to follow. She explained that
ADA is the federal statute to protect the rights of people with disabilities. She used as her example the 504 Plans that
ensure that children, or those who attend school with a physical or mental disability, have an education plan tailored to
Shawna then moved on to the California state statutes, like the Unruh Civil Rights act which is a broadly written state
law that prohibits discrimination by business establishments. Within the state arena is also the Blind and Other Physically
Disabled Person's act and the Unfair Competition Law (which was enacted for businesses that engage in unfair business practices),
the Fair Employment and Housing Act (which protects those that are discriminated in employment and housing..
Shawna explained that we are fortunate that California laws protect our citizens so well. She even covered how you could
conceivably be protected under ADA even if you have no disability. As an example she stated that you might be fired because
an employer notices that you have taken time off in the past for an unavoidable injury, and he might discriminate against
you for that period of time in the past over which you had no control. Or you might be regarded with a disability and could
file a discrimination claim if you accompany a person with a disability who has been discriminated against, such as a friend
that wheels a handicapped buddy or a parent who pushes the wheelchair of a child with a disability.
Shawna discussed the different Title programs:
v Title I - covers employment (employers over 15 people) and reasonable accommodations.
v Title II - covers public entities/state and local governments. (but not the federal government)
v Title III is public accommodations as the law applies to businesses.
v Title IV is a miscellaneous provision that covers public communication, telecommunications for the Deaf and Hard of
In closing Ms. Parks spoke ever so briefly about the Zoo lawsuit that is being brought forward by a class of mobility
challenged people who visit the San Diego Zoo/Wild Animal Park on motorized scooters and power wheelchairs. She discussed
ADA issues as they apply to non-discrimination policies.
Florence Ledsam Shares Letter on Exercise from Dr. Perry
One of our members, Florence Ledsam, shared a 1991 letter from Dr. Jacquelin Perry, a renowed expert on PPS, regarding exercise
with the members of our support group during our March 2006 meeting. The members asked that we post the actual letter on the
website so everyone could benefit from Dr. Perry's opinion on this ever present question.
Frustrated with your Doctor - A group Discusssion
|Dr. Bill Greer
The La Jolla March 9th meeting was very productive and informative. The topic for this month was frustration with our Doctors
and to assess how our insurance service providers were meeting our needs. Basically, in a roundtable format, we discussed:
What our experiences were. How did those interactions make us feel? What did we do to get the attention of our Doctors and
providers to meet our specific needs? What was the outcome of those requests? How would we change our approach if we had
the same situation occur again? And what information would we recommend to others faced with the same situation?
The guest co-moderator along with Rick K. was Dr. William Grier (psychiatrist/retired), and he did a great job of keeping
a positive spin on topics. He is very charismatic, and you can tell that people love him instantly and share willingly with
him. He last visited a La Jolla meeting a couple of years back. He was very exasperated at the time about how to approach
helping himself, and from the story he relates now, at the time he was in a great deal of PPS pain and on medication to deal
with it. With the help of a polio knowledgeable physical therapist, he got his life back in perspective, is free of heavy
pain medication, and he looks wonderful. I hope he attends meetings much more often in the future.
Bi-Annual Fund Raising Appeal for PPSManager
Before I begin this appeal it's important for all PPSManager readers to know that although my name is Rick I'm not the same
Rick that works so tirelessly authoring, editing, and publishing our newsletter, the PPSManager. I am Rick Kneeshaw the volunteer
Facilitator for the San Diego Polio Survivors, La Jolla group, sometimes known as the "other Rick" or "Rick
Regardless of what I'm called I offered to assist in coordinating a fund raising appeal to support the continued publishing
of the newsletter. The very fact that you are reading these words indicates that you receive and benefit from our newsletter.
As most of you know the PPSManager is mailed free to over 600 polio survivors in southern California bi-monthly to keep them
informed on a host of polio and post polio syndrome (PPS) related topics. I'm sure most of you would agree that dealing with
PPS is much easier when you know that you're not dealing with it alone. We all benefit from learning how others with PPS handle
the symptoms, problems, and solutions that the PPSManger elucidates in each issue. Articles are submitted to the newsletter
from local polio survivors and from national polio newsletters and sources, all of which are selected and tirelessly edited
by Rick Van Der Linden, to provide us with essential information related to polio, all in one free newsletter.
Like most publishing efforts there is a cost associated with the newsletter although everyone receives it for free. As
in the past we rely on the generous contributions of newsletter readers and other donors to fund the costs of the newsletter.
All the funds received go the cover printing and publishing expenses. No one who works on, or submits articles for the newsletter
receives any payments. A complete financial report for the PPSManager can be seen on the Newsletter page of this website.
If you enjoy and benefit from our newsletter, and are able to contribute, I'm asking you, on behalf of all polio survivors
in southern California, to support the newsletter financially. Contribute what you can to the address below and don't forget
to show the newsletter to your doctor, medical equipment supplier, church, or rich uncle if you have one. Many of our larger
donors have historically been from organizations and individuals that interface with, or have knowledge of, the post polio
Send what you can to:
Rick Van Der Linden
34711 Lyn Avenue
Hemet, CA 92545
Don't forget to let us inform us if you know someone who would like to receive the newsletter. They will be added to our
confidential mailing list regardless of whether they can contribute or not.
If you have any questions about our bi-annual appeal, or would like us to attend your survivors group meeting to provide
additional information please contact me at: email@example.com.
Thanks for your support,
"Rick down south"
What to Do with Your Old Braces
If you have ever wondered what to do with your old braces here is a suggestion. Valley Orthopaedic Clinic in Calexico, California,
just a few miles from Mexico, will receive and distribute used braces to patients on both sides of the border who have no
other way to get a brace they need.
The Clinic will repair the braces as required for each patient, or use parts from the braces to fix other broken braces.
If you would like to help out you may send your old braces to either of the following:
Valley Orthopaedic Clinic
352 East First Street.
P.O. Box 1645
Calexico, California 92231
4224 Ohio Street
San Diego, Calif. 92104
Back to Home Page